Registry Operations Director

\u003cp class\u003d"msonospacing"\u003e\u003cb\u003e\u003c/b\u003e\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"tab-stops:547px"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003ePosition Description:\u0026nbsp;\u003c/span\u003e\u003c/b\u003e\u003cbr\u003e\u003c/p\u003e\u003cp class\u003d"Default"\u003e \u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif;" class\u003d""\u003eThe Registry Operations Director will direct and manage operations for MDA's large, multi-disease Neuromuscular Observational Research (MOVR) Data Hub, a key element of MDA's mission to improve patient outcomes and help drive drug development.\u003cspan style\u003d"" class\u003d""\u003e\u0026nbsp; \u003c/span\u003eThis position works across multiple departments within MDA and with external stakeholders including, but not limited to, industry, governmental agencies, academic institutions and other non-profit organizations to build and maintain the MOVR Data Hub. \u003cspan style\u003d"" class\u003d""\u003e\u0026nbsp;\u003c/span\u003eThis position will report directly to the SVP, Scientific Program Director and can be based out of any major metropolitan area.\u0026nbsp;\u003c/span\u003e\u003c/p\u003e \u003cp class\u003d"Default"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003e\u0026nbsp;\u003c/span\u003e\u003c/b\u003e\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"tab-stops:547px"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; line-height:115%;font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003eResponsibilities:\u003c/span\u003e\u003c/b\u003e\u003c/p\u003e \u003cul style\u003d"list-style-type: disc; list-style-position: inside; margin-top: 0px; margin-left: 0px; padding-top: 0px; padding-left: 0px;"\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eServe as primary contact with vendor to ensure appropriate communication channels are maintained and schedules adhered to. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eDevelop, implement, and lead continuous improvement of case report forms. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eManage ongoing relationships with data entry sites. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eEnsure registry training programs are properly implemented and maintained. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eInterface with registry vendor on registry implementation, modification, data management and site training. \u003cspan style\u003d"" class\u003d""\u003e\u0026nbsp;\u003c/span\u003e\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eManage ongoing relationships with industry partners. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eParticipate in proposal and budget development, evaluate feasibility of potential programs and impact on registry operations and goals. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003ePrepare presentations and reports for stakeholders such as industry, Care Centers, MDA staff, and families. \u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif;" class\u003d""\u003e\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eCoordinate activities of team members to carry out registry objectives. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eInteract with internal and external entities including registry governance committee, legal experts, regulatory agencies, and central IRB vendor to ensure proper functioning of the registry. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspfirst" style\u003d"margin-bottom:0px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal; "\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d" " class\u003d""\u003eTravel to conferences, data hub sites and meetings as required.\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxsplast" style\u003d"margin-bottom:0px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal; "\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d" " class\u003d""\u003ePerform other duties as assigned. \u003c/span\u003e\u003c/li\u003e\u003c/ul\u003e \u003cp class\u003d"msonormal" style\u003d"margin-bottom:0px;margin-bottom:0.00013333333333333334px;line-height: normal"\u003e\u0026nbsp;\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"tab-stops:547px"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; line-height:115%;font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003e\u0026nbsp;\u003c/span\u003e\u003c/b\u003e\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"tab-stops:547px"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; line-height:115%;font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003eCompetencies: \u003cspan style\u003d"" class\u003d""\u003e\u0026nbsp;\u0026nbsp;\u003c/span\u003e\u003c/span\u003e\u003c/b\u003e\u003c/p\u003e \u003cul style\u003d"list-style-type: disc; list-style-position: inside; margin-top: 0px; margin-left: 0px; padding-top: 0px; padding-left: 0px;"\u003e\u003cli class\u003d"msolistparagraphcxspfirst" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eLeadership\u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d"" class\u003d""\u003e- Exhibits confidence in self and others; Inspires and motivates others to perform well; Effectively influences actions and opinions of others; Accepts feedback from others; Gives appropriate recognition to others.\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspmiddle" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eCommunication Skills\u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d" " class\u003d""\u003e - Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspmiddle" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eProfessionalism\u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d"" class\u003d""\u003e - Work well in a fast-paced environment; treat others with respect and consideration; accept responsibility for own actions. Understand business implications of decisions, align work with strategic goals, complete administrative tasks and develop strategies to achieve organizational goals.\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspmiddle" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eTeamwork \u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d" " class\u003d""\u003e- Balances team and individual responsibilities; Exhibits objectivity and openness to others' views; Gives and welcomes feedback; Contributes to building a positive team spirit; Puts success of team above own interests; able to build morale and group commitments to goals and objectives: Supports everyone's efforts to succeed. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspmiddle" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eInnovation\u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d"" class\u003d""\u003e - Displays original thinking and creativity; Meets challenges with resourcefulness;\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxspmiddle" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d" " class\u003d""\u003eGenerates suggestions for improving work; Develops innovative approaches and ideas; Presents ideas and information in a manner that gets others\u0027 attention\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"msolistparagraphcxsplast" style\u003d"margin-top:0px;margin-right:0px; margin-bottom:0px;margin-left:30px;margin-bottom:0.00013333333333333334px; text-indent:-18px;line-height:normal;"\u003e\u003cspan style\u003d"font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cb style\u003d"" class\u003d""\u003e\u003cu class\u003d""\u003e\u003cspan style\u003d"" class\u003d""\u003eOrganizational Support\u003c/span\u003e\u003c/u\u003e\u003c/b\u003e\u003cspan style\u003d" " class\u003d""\u003e - Follows policies and procedures; Completes tasks correctly and on time; supports organization\u0027s goals and values; Supports affirmative action and respects diversity.\u003c/span\u003e\u003c/li\u003e\u003c/ul\u003e \u003cp class\u003d"msonormal" style\u003d"margin-top:0px;margin-right:72px;margin-bottom:0px; margin-left:0.13333333333333333px;margin-bottom:0.00013333333333333334px;line-height:normal; text-autospace:none"\u003e\u0026nbsp;\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"margin-bottom:0px;margin-bottom:0.00013333333333333334px;line-height: normal"\u003e\u0026nbsp;\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"tab-stops:547px"\u003e\u003cb class\u003d""\u003e\u003cspan style\u003d"font-size:18.666666666666664px; line-height:115%;font-family:\u0026quot;Arial Rounded MT Bold\u0026quot;,sans-serif; color:#596AB3;" class\u003d""\u003eQualifications\u003c/span\u003e\u003c/b\u003e\u003c/p\u003e \u003cul style\u003d"list-style-type: disc; list-style-position: inside; margin-top: 0px; margin-left: 0px; padding-top: 0px; padding-left: 0px;"\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eBachelor\u0027s degree in life sciences, nursing or related field. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003e7-10 years clinical research and/or registry experience including 3 years leadership experience or equivalent combination of education, training and experience. \u003c/span\u003e\u003c/li\u003e\u003c/ul\u003e \u003cul style\u003d"list-style-type: disc; list-style-position: inside; margin-top: 0px; margin-left: 0px; padding-top: 0px; padding-left: 0px;" class\u003d""\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eIn depth knowledge of, and skill in applying, applicable clinical knowledge and registry operational knowledge. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eDemonstrated financial management skills, including project financial tracking and accounting methods. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eExcellent oral and written communication and interpersonal skills. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eExcellent organization and problem-solving skills. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eStrong presentation skills.\u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eAbility to balance operational and strategic priorities. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eDemonstrated knowledge of HIPAA and IRB guidelines. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eHighly effective team leadership skills. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eSound judgment and decision-making skills. \u003c/span\u003e\u003c/li\u003e\u003cli class\u003d"Default" style\u003d"margin-left:36px;text-indent:-18px;"\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:Symbol; " class\u003d""\u003e\u003c/span\u003e\u003cspan style\u003d"font-size:14.666666666666666px;font-family:\u0026quot;Calibri\u0026quot;,sans-serif; " class\u003d""\u003eStrong software and computer skills, including MS Office applications. \u003c/span\u003e\u003c/li\u003e\u003c/ul\u003e \u003cp class\u003d"msonormal" style\u003d"margin-bottom:0px;margin-bottom:0.00013333333333333334px;line-height: normal"\u003e\u0026nbsp;\u003c/p\u003e \u003cp class\u003d"msonormal" style\u003d"text-autospace:none"\u003e\u003cspan style\u003d" " class\u003d""\u003eMDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.\u003c/span\u003e\u003c/p\u003e \u003cp class\u003d"msonospacing"\u003e\u003c/p\u003e


Meet Some of MDA's Employees

Nathan R.

Director of Business Development

Nathan works with businesses in the local community to develop new partnerships with MDA. The funds he raises help the organization's mission grow and thrive.

Sabrina A.

Executive Director

Sabrina’s primary responsibility is working with the Fundraising Team at MDA to spread awareness about the organization’s mission and raise as much money as possible for the cause.


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