Family Care Specialist


At MDA, we arefighting to free individuals — and the families who love them — from theharmful effects of muscle-debilitating diseases so they can live longer andgrow stronger.

Our Values are our strength: We believe in MUSCLE:

Mission: We'redriven to accelerate progress for families and muscle health.

Understanding: We're attentive to our constituent's needs and each other's.

Stewardship: Byinvesting precious resources wisely, we drive the best possible outcomes.

Collaboration: We foster win-win partnerships and build communities.

Learning: Knowledge powers our success and empowers our people.

Excellence: Westrive to do our best and exceed constituents' expectations.


The Family Care Specialist will report to the AssociateDirector of Family Support & Clinical Care. The primary responsibility ofthis role is family support and engagement. This individual will implementfamily support, education and engagement programs. They will direct/co-direct 2summer camp sessions per year and is responsible for planning, volunteerrecruitment and implementation (with district team and Associate Director).


  • Directs/co-directs2 summer camp sessions per year (requires overnight stays at camp for up to twoweeks);
  • Workswith Associate Director of Family Support & Clinical Care to streamlineactivities and themes for camp program
  • SupportNational Awareness month initiatives
  • Oversightof equipment loan program
  • Implementseducation, family engagement & transitions programs
  • Createand maintain MDA Resource Center by state/locality to provide to stakeholderswhile providing updates to National call center
  • Recruitsfor Muscle Walk
  • Attendsclinic(s) in area
  • Developmentand management of annual family outreach plan
  • Registrationof families, assisting families and maintaining family database
  • Takingpart in local educational advocacy efforts
  • Responsiblefor fostering a partnership with the district staff to implement Muscle Walk,Summer Camp and other major programs.
  • Otherduties as assigned.


  • Adaptability: Adapts to changes in the work environment; Manages competingdemands; Changes approach or method to best fit the situation; able to dealwith frequent change. Must be able to work in a dynamic, complex,fast-paced organization.
  • Communication Skills: Clearly and persuasively communicate, listen andseek clarifications; participate in meetings, write clearly and informatively,comfortable with public speaking.
  • Professionalism: Work well in a fast-paced environment; treat others withrespect and consideration; accept responsibility for own actions. Understandbusiness implications of decisions, align work with strategic goals, completeadministrative tasks and develop strategies to achieve organizational goals.
  • Teamwork: Balances team andindividual responsibilities; Exhibits objectivity and openness to others'views; Gives and welcomes feedback; Contributes to building a positive teamspirit; Puts success of team above own interests; Ability to build morale andgroup commitments to goals and objectives: Supports everyone's efforts tosucceed.
  • Problem Solving: Identify and resolve problems in a timely manner. Gather and analyze information skillfully;solicit feedback and use reason when dealing with emotional topics.


  • Anundergraduate degree is preferred. Advanced degree in a related field isdesired.
  • Previousexperience in voluntary health organizations or related fields stronglypreferred.
  • Successfultrack record in program implementation and relationship building.
  • Abilityto travel and navigate geographically-diverse markets. Overnight travel will berequired. Travel percentage varies based on territory. Reliable transportationrequired.
  • Comfortableinteracting with families from diverse disability, cultural and economicbackgrounds within a semi-medical environment.

MDA is an Equal Opportunity/Affirmative Actionemployer. All qualified applicants will receive consideration for employmentwithout regard to race, color, religion, sex, national origin, disability, orprotected veteran status.

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