Family Care Specialist

At MDA, we are fighting to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger.

Our Values are our strength: We believe in MUSCLE:
- Mission: We’re driven to accelerate progress for families and muscle health.
- Understanding: We’re attentive to our constituent’s needs and each other’s.
- Stewardship: By investing precious resources wisely, we drive the best possible outcomes.
- Collaboration: We foster win-win partnerships and build communities.
- Learning: Knowledge powers our success and empowers our people.
- Excellence: We strive to do our best and exceed constituents’ expectations.

Position Description:
The Family Care Specialist will report to the Associate Director of Family Support & Clinical Care. The primary responsibility of this role is family support and engagement. This individual will implement family support, education and engagement programs. They will direct/co-direct 2 summer camp sessions per year and is responsible for planning, volunteer recruitment and implementation (with district team and Associate Director).

- Directs/co-directs 2 summer camp sessions per year (requires overnight stays at camp for up to two weeks);
- Works with Associate Director of Family Support & Clinical Care to streamline activities and themes for camp program
- Support National Awareness month initiatives
- Oversight of equipment loan program
- Implements education, family engagement & transitions programs
- Create and maintain MDA Resource Center by state/locality to provide to stakeholders while providing updates to National call center
- Recruits for Muscle Walk
- Attends clinic(s) in area
- Development and management of annual family outreach plan
- Registration of families, assisting families and maintaining family database
- Taking part in local educational advocacy efforts
- Responsible for fostering a partnership with the district staff to implement Muscle Walk, Summer Camp and other major programs.
- Other duties as assigned.

- Adaptability: Adapts to changes in the work environment; Manages competing demands; Changes approach or method to best fit the situation; able to deal with frequent change. Must be able to work in a dynamic, complex, fast-paced organization.
- Communication Skills: Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively, comfortable with public speaking.
- Professionalism: Work well in a fast-paced environment; treat others with respect and consideration; accept responsibility for own actions. Understand business implications of decisions, align work with strategic goals, complete administrative tasks and develop strategies to achieve organizational goals.
- Teamwork: Balances team and individual responsibilities; Exhibits objectivity and openness to others’ views; Gives and welcomes feedback; Contributes to building a positive team spirit; Puts success of team above own interests; Ability to build morale and group commitments to goals and objectives: Supports everyone’s efforts to succeed.
- Problem Solving: Identify and resolve problems in a timely manner. Gather and analyze information skillfully; solicit feedback and use reason when dealing with emotional topics.

- An undergraduate degree is preferred. Advanced degree in a related field is desired.
- Previous experience in voluntary health organizations or related fields strongly preferred.
- Successful track record in program implementation and relationship building.
- Ability to travel and navigate geographically-diverse markets. Overnight travel will be required. Travel percentage varies based on territory. Reliable transportation required.
- Comfortable interacting with families from diverse disability, cultural and economic backgrounds within a semi-medical environment.

MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.

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