Asso Director, Family Support & Clinical Care

At MDA, we are fighting to free individuals — and the families who love them — from the harmful effects of muscle-debilitating diseases so they can live longer and grow stronger.

Our Values are our strength:

We believe in MUSCLE:
Mission: We’re driven to accelerate progress for families and muscle health.
Understanding: We’re attentive to our constituent’s needs and each other’s.
Stewardship: By investing precious resources wisely, we drive the best possible outcomes.
Collaboration: We foster win-win partnerships and build communities.
Learning: Knowledge powers our success and empowers our people.
Excellence: We strive to do our best and exceed constituents’ expectations.

Position Description:
The Associate Director of Family Support & Clinical Care will report to Director of Family Support & Clinical Care. The primary role of this position is to lead implementation of MDA’s clinical, education, summer camp and family engagement programs. This individual will manage and lead a team of Family Care Specialists. The Associate Director of Family Support & Clinical Care will be responsible for maintaining and growing relationships with MDA Care Center personnel and institutions throughout their territory, and will co-direct at least one camp session annually.

- Lead, train and manage Family Care Specialists in territory (i.e. training, goal setting, accountabilities, approving PTO requests, performance reviews, etc.)
- Attend clinic in home market regularly and other territory clinics on a quarterly or semiannual basis.
- Maintain and grows relationships with MDA Care Centers/host institutions in territory; organizes clinic team meetings in collaboration with regional Director of Family Support & Clinical Care.
- Work with local stakeholders on MDA’s National Advocacy Initiatives
- Work with local families to provide local educational advocacy for families by providing support to educators, IEP plans and classroom education
- Staff lead on larger educational events for families (Muscle Summits and other)
- Ensure effective training about and implementation of clinical, education, summer camp, transition and family engagement programs
- In collaboration with district teams, assists in recruitment of families for Muscle Walk
- Co-direct at least one camp session annually (requires overnight stays at camp for up to one week);
- Assist with camp planning/prep (such as medical staff and counselor recruitment; informing families at clinic)
- Oversee the budget and annual planning for districts in the territory
- Responsible to oversee coverage during Family Care Specialist vacancies & PTO
- Establish and maintain effective partnership with Divisional Directors and Executive Directors throughout territory

- Leadership: Exhibits confidence in self and others; Inspires and motivates others to perform well; Accepts feedback from others; Gives appropriate recognition to others.
- Adaptability: Adapts to changes in the work environment; Manages competing demands; Changes approach or method to best fit the situation; able to deal with frequent change. Must be able to work in a dynamic, complex, fast-paced organization.
- Communication Skills: Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively, comfortable with public speaking.
- Professionalism: Work well in a fast-paced environment; treat others with respect and consideration; accept responsibility for own actions. Understand business implications of decisions, align work with strategic goals, complete administrative tasks and develop strategies to achieve organizational goals.
- Teamwork: Balances team and individual responsibilities; Exhibits objectivity and openness to others’ views; Gives and welcomes feedback; Contributes to building a positive team spirit; Puts success of team above own interests; Ability to build morale and group commitments to goals and objectives: Supports everyone’s efforts to succeed.
- Problem Solving: Identify and resolve problems in a timely manner. Gather and analyze information skillfully; solicit feedback and use reason when dealing with emotional topics.

- An undergraduate degree in a social services or health-related field is preferred. Advanced degree in a related field is desired.
- Previous experience in voluntary health organizations or related field strongly preferred.
- Successful track record in strategic planning, program implementation, consensus building and relationship building.
- Previous management experience preferred.
- Ability to travel and navigate geographically-diverse markets. Overnight travel will be required. Travel percentage varies based on territory. Reliable transportation required.
- Experience in supporting Division/District offices in their development efforts.
- Comfortable interacting with families from diverse disability, cultural and economic backgrounds within a semi-medical environment.

MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.

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