Advocacy Engagement Manager

Position Description:
The Advocacy Engagement Manager will report to the Sr. Director of Policy & Advocacy. This individual will have experience with national level grassroots, grasstops, and community organization and campaigns, and will have exceptional written and oral communication skills. The Manager will be able to craft messaging aimed at diverse audiences in order to engage MDA’s multiple stakeholder groups such as patients, families/caregivers, healthcare providers, and policymakers. This individual will be responsible for working with colleagues across MDA’s departments to ensure that all applicable outgoing communications are reflective of the organization’s advocacy priorities. The Manager will chiefly focus on campaign and advocate organization and communication, but may also be required to represent MDA in multiple functions including, but not limited to, coalition efforts, meetings with policy makers, and other engagements to promote MDA’s work to advance innovations in science and innovations in care for the neuromuscular community.

- Develop and execute national advocacy engagement plan in consultation with Advocacy Department leadership and colleagues.
- Manage all outgoing advocacy communications and serve as chief liaison between Advocacy Department and MDA’s internal communications department.
- Develop and execute grassroots engagement operation to speed progress of state-level initiatives of importance to MDA, such as newborn screening implementation for neuromuscular conditions.
- Manage all content on MDA Advocacy site.
- Manage MDA Advocacy social media account(s).
- Identify potential grasstops advocates and coordinate program to engage them on the state and federal levels.
- Provide Advocacy Department feedback on outgoing MDA communications products on issues related to advocacy work (i.e. newborn screening, drug development, etc.)
- Write advocacy communications including but not limited to:
A) Monthly updates to registered advocates,
B) Strongly blog posts,
C) Grassroots engagements,
D) Social media posts, and
E) Quest Magazine pieces.
- Track, evaluate, and prepare regular reports around policy and advocacy efforts in which MDA is engaged or monitoring to MDA staff and partners as required.
- Represent MDA at meetings, symposia, Congressional hearings, and other events as requested.
- Work closely with MDA’s research, communications, and other departments on an ongoing basis.
- Participate in speaking engagements and on panel opportunities as requested.
- Participate in MDA training, educational activities, and events.
- Forge collaborations with likeminded advocacy organizations to expand the reach of MDA’s advocacy efforts
- Perform other related duties as required and assigned.

- Detail minded: Demonstrate accuracy and thoroughness; monitor own work to ensure quality and organization. Strong attention to detail while multitasking.
- Analytical: Synthesizes complex or diverse information; Collects and researches data; Uses intuition and experience to complement data; Designs work flows and procedures.
- Communication Skills: Clearly and persuasively communicate, listen and seek clarifications; participate in meetings, write clearly and informatively. Initiative - Demonstrate ability to work independently and as part of a team; exhibit sound and accurate judgment, including prioritization and time management skills. Able to provide support to multiple team members simultaneously.
- Problem Solving: Identifies and resolves problems in a timely manner; Gathers and analyzes information skillfully; Develops alternative solutions; Works well in group problem solving situations; Uses reason even when dealing with emotional topics.
- Professionalism - Approaches others in a tactful manner; Reacts well under pressure; Treats others with respect and consideration regardless of their status or position; Accepts responsibility for own actions; Follows through on commitments.
- Leadership- Exhibits confidence in self and others; Inspires and motivates others to perform well; Effectively influences actions and opinions of others; Accepts feedback from others; Gives appropriate recognition to others.

- Bachelor’s degree required, with a minimum of 5 years of public policy, advocacy, or relevant experience at the national level.
- Experience working on newborn screening policy, disability policy, healthcare research policy, and/or healthcare access policy preferred but not required.
- Capitol Hill, campaign, or federal agency experience strongly preferred.
- Ability to synthesize complex information and communicate in an accessible format.
- Ability to coordinate with multiple stakeholders.
- Ability to manage multiple high-level tasks and initiatives in a fast-paced environment.
- Very strong written and verbal communication skills.
- Strong computer skills, including Microsoft Office, and ability to use (or learn) advocacy software platforms and patient management platforms.
- Social media expertise required.
- Ability to analyze complex policy scenarios and understand the implications for the neuromuscular disease community.
- Ability to work collaboratively.
- Ability to multi-task.
- Strong organizational skills.
- Ability to communicate in a consistent, proactive and inclusive manner.

MDA is an Equal Opportunity/Affirmative Action employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, national origin, disability, or protected veteran status.

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